MTHFR Results

I got the results back like two weeks ago but completely forgot to post them…

I have a heterozygous C677T MTHFR mutation. So yes, I have a mutation, but it’s not severe.

Though I would like to know exactly how much of an impact it has on my detoxification. Because I never feel like I can detox enough. Every time I up my Vital Plan dose or some other antimicrobial remedy, I herx terribly and can’t clear out the extra toxins for days.

I would like to hear from anyone who has a MTHFR mutation and your experiences with it.

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The Healing Power of Keto

I’ve been on a ketogenic diet for a week now, and I must say, the results are already impressive.

Before keto: I was starting to see improvements in seizure activity. I had very poor sleep quality. I couldn’t sleep through the night. My weight had dropped some earlier this month, I believe, because of the strain on my body to detox while herxing for so long. I was having constipation and bloating.

Now, I haven’t had a major seizure for over a week. My energy has improved. My sleep quality has improved dramatically, I go to bed around 8pm and wake up when the sun rises. I’ve lost 4lbs just since September 21st. My BM’s are now regular, and no bloating. Also, my mood has been a lot better. I’ve barely cried in a week! And I don’t want to die!!!

Though I have had an increase in urination and thirst, mainly because the body dumps water and electrolytes during weight loss.

I have also been battling the ‘keto flu’, which is caused by electrolytes imbalances during the first phase of a ketogenic diet. I have been consuming tons of bone broth to combat it. But it’s manageable. At least I don’t have the actual flu. That would probably kill me.

I’m currently waiting for the results of my MTHFR test. My doctor had to send it out of state, so it’s taking quite a while. But I’ll share the results when I get them.

My walking has improved dramatically since my last post. I’m not using my wheelchair at all now. It felt weird to stand at first, but I’m adjusted to it now. I still need to work on my gait though, apparently I sway side to side when I walk…

Hopefully I’ll be back with an update soon. See you then!

A miracle?

Yesterday, a miracle occurred. I was able to walk. It was only a few steps, but I did it. I’ve been taking Lion’s Mane for about two weeks now. Lion’s Mane is known for its ability to repair nerves. I think that’s why I was able to walk. That and the physical therapy I’ve been doing for a few weeks now. I’ve still got a long way to go to get my strength back, but at least something is finally improving instead of getting worse.

Next, I’m hoping to see some improvement in my hyperacusis, which is causing by nerve damage in the auditory nerves. And it would be great if I could stop getting shooting pains all over my body.

I don’t know when I’ll remember to update next, but hopefully I’ll be coming back with more good news!

Vital Plan: Month 1

It’s been a rough month. Maybe the roughest month I’ve had since I’ve become ill. It’s hard to say.

I started on the Vital Plan Phase 1 diet and supplement protocol about a month ago. The first week was fine. The second week turned into a 7 day herx from hell. Night sweats, shaking, insomnia, anxiety, panic attacks, and complete sensory overload resulted from the amount of toxins circulating my bloodstream during that week. I honestly don’t know how I survived it without completely losing my mind. It’s over now, but I’m terrified it might happen again.

I went off the supplements for a few days, letting my body catch up with detoxing. This past week or so I’ve been taking only 1/4 capsule of each VP formula, once per day. I just increased that to 1/2 capsule today.

I decided to weigh myself the other day, and to my surprise I had lost 5 pounds. Other than that, I haven’t seen any improvements in my health this month. I plan to talk to my doctor in a couple of weeks about MTHFR and related gene mutations, and maybe liver function tests. I feel like my body isn’t detoxing as efficiently as it’s supposed to, despite all the supplements I have been taking to help it. Charcoal, burbur pinella, sealantro, detox tea, Alka Seltzer gold, lemon water, far infrared sauna, castor oil packs…. the benefit of each is marginal at best.

Recently I started doing physical therapy to try to regain some of my lost strength, and hopefully be able to walk again. I’ve been putting in my best effort, but it’s been hard with all the pain and fatigue. The day before yesterday I had a particularly violent seizure, and I injured myself. My wrist is bruised and swollen, and it doesn’t make exercising any fun. I’ve been using ice on it.

Despite it all, I’m still alive, and am doing everything in my power to become healthy. I hope you can hang in there too.

Stiff as a Board

Lately, my pain levels have been increasing. But it’s not just pain. Sometimes I can barely move. My joints and muscles are giving up on me. This morning I woke up at 10 am and said, “I feel like I’ve been hit by a bus.”

Yesterday I had to use all the pain relief methods available to me, because I was so painful I couldn’t move. Medical MJ, ibuprofen, massage with hemp oil, and laying down in bed. Like I’m just a ball of inflammation.

I think it’s safe to say at this point that the IM ceftriaxone injections are doing absolutely nothing to help me feel better. I’ve really been thinking about starting Dr. Bill Rawls Vital Plan. It’s an herbal protocol based on the Buhner one, but much simpler. All you have to do is take 3 pills from each 4 bottles, twice a day. I mean it’s a lot of pills, 24 per day, but I’ve gotten used to swallowing ridiculous amounts of pills. There is also a diet that you are supposed to stick to, and apparently it is very strict. I will do my best.

I see my Lyme doc on August 9, and will be discussing this with her. In the mean time, I’ll just be trying to manage my symptoms like I always do.

One day at a time, one step at a time.

Ready for Change

Today I saw my Lyme doc again. I haven’t been approved for IV antibiotics, but I am going to try IM (intramuscular) ceftriaxone for $200 per month. I guess my mother will be giving me butt injections. If that doesn’t work, or if it stops working, I want to start the Cowden protocol.

This morning before my appointment I decided to try taking Nutramedix’s adrenal support drops. I took the recommended 20 drops serving size 10 minutes before breakfast. Several minutes later, I started feeling a bit anxious. It quickly escalated into a panic attack with tactile and auditory disorientation, sweaty palms, severe shaking, extreme thirst and diarrhea. Yes, it worked. TOO WELL. The panic attack lasted for about two hours, even after taking lorazepam. But after the awful symptoms stopped, I had a lot of energy. Not quite manic, but very talkative. And I didn’t feel any fatigue until around 4 pm. I felt halfway normal. Not bad, Nutramedix, not bad. Suffice to say, I will not be taking the full dose next time.

I am going to be getting a neuropsych eval sometime soon, though the exact date is not set up yet.

That pretty much sums up today’s events, and maybe with a little help from adrenal support, I will feel like writing again tomorrow.

Good luck in your treatment, everyone. Keep trying even after you lose hope. Hope can be found again.

Swirling Thoughts

Sorry if this post gets a bit rambly, and doesn’t make any sense. Just wanted to document my current state of mind.

At this moment, and many other times throughout the day, it seems as though my thoughts are becoming more random and strange. I can’t really think of the words to describe what is happening in my brain. The thoughts are sort of like those that you would have during a dream. It’s like I’m not really in control of my mind.

I’m having extreme difficulty even writing sentences. The words are flying around in my head of what I want to say, but I can’t catch them. Nothing really makes sense to me right now.

There is so much pressure inside my skull lately, it feels like it might crack open like a delicate piece of pottery. I’ve been having to wear earplugs constantly because of the sound sensitivity. But I feel like having less sound stimuli is confusing my brain even more. Even though I’m wearing earplugs, it’s never silent. I hear this kind of white noise. Sometimes it gets so loud, I’m better off not wearing the earplugs.

I’ve had several occasions recently when someone asks me a question, and I just freeze. I’m not sure if it’s that I don’t understand the question, or I just can’t form an answer. Probably the latter.

I see my Lyme doc on Thursday, and I’m just trying to hang on. The suicidal thoughts have been creeping back in. Sometimes I feel like I can’t bear to be inside this body anymore. I just need to survive this.